NRW.social

0 Beiträge0 Beteiligte0 Beiträge heute

Andrew GiffordHere's me sounding hilariously nasal, talking about my ME photo project and what photography has given me in return;<a href="https://photowalk.show/episodes/resilience-through-photography" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://photowalk.show/episodes/resilience-through-photography</a>My section is c.27 minutes in.<a href="https://mastodon.social/tags/Photography" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Photography</a> <a href="https://mastodon.social/tags/MECFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MECFS</a> <a href="https://mastodon.social/tags/pwME" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#pwME</a> <a href="https://mastodon.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#LongCovid</a> <a href="https://mastodon.social/tags/LongHauler" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#LongHauler</a> <a href="https://mastodon.social/tags/MillionsMissing" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MillionsMissing</a>

Andrew GiffordI over did it two days ago - from my ME/CFS photo project<a href="https://www.instagram.com/p/DCR3OpViii0/" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://www.instagram.com/p/DCR3OpViii0/</a><a href="https://glass.photo/andrewgifford/3iBiATl89BKN2fvj2dV8A6#8ba17188-2ee2-4239-af1a-56945bea4807" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://glass.photo/andrewgifford/3iBiATl89BKN2fvj2dV8A6#8ba17188-2ee2-4239-af1a-56945bea4807</a> <a href="https://mastodon.social/tags/MECFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MECFS</a> <a href="https://mastodon.social/tags/MECFSart" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MECFSart</a> <a href="https://mastodon.social/tags/MECFSphotography" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MECFSphotography</a> <a href="https://mastodon.social/tags/pwME" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#pwME</a> <a href="https://mastodon.social/tags/LongHauler" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#LongHauler</a> <a href="https://mastodon.social/tags/MillionsMissing" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MillionsMissing</a>

Andrew GiffordAnyone know what evidence-based treatments for ME/CFS the NHS is open to exploring?I'm concerned that the Bristol CFS clinic is going to lean into "if it's not spelled out by NICE we ain't trying to get you well", (besides physio, OT and talking therapy).Thanks!<a href="https://mastodon.social/tags/MECFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MECFS</a> <a href="https://mastodon.social/tags/pwME" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#pwME</a> <a href="https://mastodon.social/tags/NHS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#NHS</a> <a href="https://mastodon.social/tags/LongHauler" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#LongHauler</a>

longcovidMany thanks to Thomas Nguyen, DO, pediatrician, and Frank Han, MD, pediatric cardiologist, for this discussion on pediatric long COVID. <a href="https://mstdn.social/tags/longCOVID" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#longCOVID</a> <a href="https://mstdn.social/tags/longCOVIDkids" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#longCOVIDkids</a> <a href="https://mstdn.social/tags/LongHauler" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#LongHauler</a> <a href="https://mstdn.social/tags/pediatrics" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#pediatrics</a> <a href="https://mstdn.social/tags/TownHall" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#TownHall</a><a href="https://youtu.be/B8_-r_Nf_mY" rel="nofollow noopener noreferrer" target="_blank">https://youtu.be/B8_-r_Nf_mY</a>

maydayAnyway, please sign this petition. "In March 2022, the U.S. Government Accountability Office estimated that 23 million Americans had developed Long COVID. Nearly a year later, studies suggest that number could be as high as 41 million. Yet there is no cure or treatment available."<a href="https://spore.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#LongCovid</a> <a href="https://spore.social/tags/LongHauler" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#LongHauler</a> <a href="https://spore.social/tags/PASC" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#PASC</a> <a href="https://spore.social/tags/Artist" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Artist</a> <a href="https://spore.social/tags/BrokeAsHell" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#BrokeAsHell</a> <a href="https://actionnetwork.org/letters/help-end-the-long-covid-crisis?source=direct_link&" rel="nofollow noopener noreferrer" target="_blank">https://actionnetwork.org/letters/help-end-the-long-covid-crisis?source=direct_link&</a>

maydayit is hard to think or do anything. I wait for doctor's appointments, I wait to hear about my long covid clinic referral, I'm broke and dependent on my spouse, my medical history is too limited to apply for aid. I take vitamins, monitor blood pressure, go outside every day to get a little sun and move small things around in the yard, and try to read and paint, but mostly sleep. It got easier for a little bit, but now it is more difficult.<a href="https://spore.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#LongCovid</a> <a href="https://spore.social/tags/LongHauler" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#LongHauler</a> <a href="https://spore.social/tags/PASC" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#PASC</a> <a href="https://spore.social/tags/Artist" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Artist</a> <a href="https://spore.social/tags/BrokeAsHell" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#BrokeAsHell</a>

maydaySpread this around to all your long covid pals and the people who love and support them.<a href="https://spore.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#LongCovid</a> <a href="https://spore.social/tags/LongHauler" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#LongHauler</a> <a href="https://spore.social/tags/Covid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Covid</a> <a href="https://spore.social/tags/PASC" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#PASC</a> <a href="https://actionnetwork.org/letters/help-end-the-long-covid-crisis?source=direct_link&" rel="nofollow noopener noreferrer" target="_blank">https://actionnetwork.org/letters/help-end-the-long-covid-crisis?source=direct_link&</a>

maydayI just wrote the @LongCovidAP letter "Help End the Long COVID Crisis" to send to government — Write one here:<a href="https://spore.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#LongCovid</a> <a href="https://spore.social/tags/LongHauler" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#LongHauler</a> <a href="https://spore.social/tags/PASC" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#PASC</a><a href="https://actionnetwork.org/letters/help-end-the-long-covid-crisis?source=direct_link&" rel="nofollow noopener noreferrer" target="_blank">https://actionnetwork.org/letters/help-end-the-long-covid-crisis?source=direct_link&</a>

maydayThis week I will learn how to support myself financially while struggling with long covid, will thread what I learn here, and I'd love if anyone with insight into this can weigh in with their experiences. I'm reading the Long Covid Survival Guide, and am finding it very helpful. I checked it out online through the local library. Online library services are my favorite thing now. <a href="https://spore.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#LongCovid</a> <a href="https://spore.social/tags/LongHauler" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#LongHauler</a> <a href="https://spore.social/tags/FinancialEducation" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#FinancialEducation</a> <a href="https://spore.social/tags/Disability" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Disability</a><a href="https://theexperimentpublishing.com/catalogs/fall-2022/long-covid-survival-guide/" rel="nofollow noopener noreferrer" target="_blank">https://theexperimentpublishing.com/catalogs/fall-2022/long-covid-survival-guide/</a>

mayday"You never can tell what another person is going through. Since experiencing long COVID, I understand this saying in a whole new way. I don’t look sick, but sometimes I struggle to remember where I am, or I have a panic spiral because I don’t know where to sit at a restaurant, or I can’t read signs."<a href="https://spore.social/tags/longcovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#longcovid</a> <a href="https://spore.social/tags/longhauler" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#longhauler</a><a href="https://magazine.alumni.ncsu.edu/2022/the-long-haul/" rel="nofollow noopener noreferrer" target="_blank">https://magazine.alumni.ncsu.edu/2022/the-long-haul/</a>

💖moonmouse (they/them)💖the US said eh, we’re bored and just pretended COVID was over because they wanted it to be. That’s not how pandemics work. COVID cases are rising and our hospitals (especially children’s hospitals) are at their breaking points. All so people can act like things are back to what normal was prepandemic, like NEWSFLASH: 7 MILLION PEOPLE ARE DEAD. 1/ <a href="https://disabled.social/tags/covid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#covid</a> <a href="https://disabled.social/tags/masks" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#masks</a> <a href="https://disabled.social/tags/mask" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#mask</a> <a href="https://disabled.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#LongCovid</a> <a href="https://disabled.social/tags/PASC" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#PASC</a> <a href="https://disabled.social/tags/COVID19" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#COVID19</a> <a href="https://disabled.social/tags/LongHaulers" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#LongHaulers</a> <a href="https://disabled.social/tags/longhauler" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#longhauler</a> <a href="https://disabled.social/tags/wearyourmask" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#wearyourmask</a> <a href="https://disabled.social/tags/WearYourDamnMask" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#WearYourDamnMask</a> <a href="https://disabled.social/tags/sad" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#sad</a>

Just The Doodle💪 You know what to do to smash a stigma. Be an ally, talk about <a href="https://zeroes.ca/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#LongCovid</a> to normalise it. :virus: As a <a href="https://zeroes.ca/tags/Longhauler" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Longhauler</a>, share your experiences and make your needs clear. 💪 <a href="https://theconversation.com/long-covid-stigma-may-encourage-people-to-hide-the-condition-194939" rel="nofollow noopener noreferrer" target="_blank">https://theconversation.com/long-covid-stigma-may-encourage-people-to-hide-the-condition-194939</a>

hiding from plagues ☣️♿<a href="https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9395797/" rel="nofollow noopener noreferrer" target="_blank">https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9395797/</a>I still need to read this but I found a study done recently for CoQ10 supplement and ALA for <a href="https://kolektiva.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#LongCovid</a> <a href="https://kolektiva.social/tags/longhauler" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#longhauler</a> I still need to do more reading but just putting it up for anyone who wants to read it in the meantime. <a href="https://www.webmd.com/lung/news/20220922/long-covid-patients-unproven-alternative-therapies" rel="nofollow noopener noreferrer" target="_blank">https://www.webmd.com/lung/news/20220922/long-covid-patients-unproven-alternative-therapies</a> And this separate article about the situation

Frühere Suchanfragen

Suchoptionen

Verwaltet von:

Serverstatistik:

#longhauler